Today marks the 17th year since I got diagnosed with a very rare cancer: Leiomyosarcoma of the uterus.
It was in the late afternoon of November 16, 2000 when my Gynecologist, after telephoning my husband and I from home to come to see her, informed that the biopsy report noted “Leiomyosarcoma” as the final Diagnosis. Handing over a copy to us, it didn’t immediately register in our mind that she meant “cancer” when she mentioned the strange-sounding diagnosis of Leiomyosarcoma! She admitted that my case is the very first she has encountered in the long years of her practice and that it was actually her first time to know of such a rare form of cancer!
After removing the uterine mass (which she thought to be just a fibroid), via Myomectomy, in October 21, 2000, she visited me afternoon in the hospital and informed that she sent samples for biopsy as a routine procedure.
Leiomyosarcoma, or LMS, for short, is a malignancy which involves the soft tissues in the body, in my case, the lining of the uterus. It is one of the sub-classifications of Sarcoma and appears in one among four million women worldwide.
I have written a number of stories relating my brush with LMS and I would like to share a few selected parts:
“I was soon referred to the Kuwait Cancer Control Center (KCCC) with a recommendation by my Gynecologist for total removal of all my reproductive organs. And that was in November 16, 2000, the day I was informed of the result of the biopsy, nearly a month after the surgery to remove the “fibroid” was done.”
“Although my cancer was high grade and was deemed likely to recur within the first five years, I passed the years till the 14th when a recurrence in my pelvic area showed in my September 2014 CT scans. Removal of the huge tumor, which was sitting on my right bladder, was done October 17, 2014 and because the tumor again tested positive for both estrogen and progesterone receptors, I was started on an Aromatase Inhibitor, in the form of Femara (Letrozole), in November 2014, as soon as the biopsy and special studies report came in, and lasted till July 2015.”
“My case is quite peculiar because despite me not taking any treatment such as chemotherapy and radiation, I lasted 14 years before a recurrence. I have actually defied all odds and predictions of science and I attribute this to my God’s intervention. He is always healing me and it is not only the cancer which I am facing at the moment. There are a lot more and yet I continue to thrive and transcend all the difficulties and discomforts and I continue to bear witness to God’s love to and protection of all His creatures!“